Helpful Cerebral Palsy Resources
Cerebral Palsy Links and Support Groups
Those feeling the effects of cerebral palsy may feel overwhelmed and alone at times. Fortunately, there are many different support groups to help parents and their children.
These resources will help put parents in touch with others who are experiencing the same types of problems, and with organizations which offer support and assistance.
Links to Cerebral Palsy Facts and General Information
There are literally hundreds of links on the web that provide information about cerebral palsy. The following list includes just a few to help you get started.
- Deaf People and Cerebral Palsy – Real stories about several people with cerebral palsy and other disabilities.
- Cerebral Palsy Resource Center– Find information, contacts, and additional resources about disabilities including CP.
- Nemours Children’s Health System –Provides information about cerebral palsy and links to other sites that provide additional information.
- My Child – Website that provides links to various sites that provide information about various aspects of cerebral palsy.
- Hemi-Kids – – Support for parents of children with hemiplegia, hemiparesis, or cerebral palsy on one side of the body. Features Hemi-Kids e-mail list.
- 25 Cerebral Palsy Resources You Should Know About – List of links and resources with information about cerebral palsy.
- 10 Helpful Cerebral Palsy Resources – Website with list of links to cerebral palsy resources.
Websites and Information from Others with Cerebral Palsy
Not everyone has the same experiences with cerebral palsy, so it can be very helpful to speak with others who are dealing with the condition. These websites will connect you with people who have cerebral palsy and are willing to discuss their condition. This will help you learn about the challenges other people face and help you better understand how to deal with your own challenges in a positive manner.
- Carmen’s Place– Christine shares stories about her life with cerebral palsy.
- Neurology Channel.com – A Webring about cerebral palsy.
Information about Collecting Disability Benefits
Those who are suffering from cerebral palsy are often unable to pursue a career on a regular basis. These websites will provide information about collecting disability benefits or at least helping parents cover expenses of those disabilities.
- Guide to Disability Benefits from Disability.gov A website that contains links to information about collecting disability benefits.
- Medicare & Social Security Benefits for Disabled Individuals A website that provides information about qualifying for Medicare Disability for those who are collecting social security disability benefits.
- Extra Help with Medicare Prescription Drug Plan Costs The website provides information for those who need to obtain help with the costs of Medicare prescription drug plans.
Guide to Transportation for Those with Cerebral Palsy
Anyone who has cerebral palsy needs to still feel he or she is independent. Those with CP must be able to secure transportation in order to get places, whether this means having public transportation that can cater to those with disabilities or a vehicle that has been modified to allow those with CP to drive or ride comfortably.
- Disability.gov’s Guide to Transportation – Links and websites to help those with cerebral palsy find transportation and become independent.
Housing Information and Links
Those with cerebral palsy and/or their caregivers often have a difficult time finding housing they can afford or that has the necessary accommodations for their disabilities. The following websites and associated links will help those who need to finding appropriate housing or help moving.
- Buying a Home | Department of Housing and Urban Development – The website provides links to information about buying homes.
- Guide to Moving for the Disabled – The website provides information and resources about moving in several large cities to help those with disabilities.
Links to Home Modifications and Safety
Some it is necessary to make modifications to a home in order to make it possible for those with cerebral palsy and other disabilities to living independently. This includes not just modifications to help them move around easily, but also additional safety features that might be necessary. The following links provide information about making necessary accommodations or those with disabilities.
- Home Modifications to Promote Independent Living – Blog provides a link to an AARP website with facts about making home modifications in order to accommodate those with disabilities including cerebral palsy.
- Home Safety for People with Disabilities – Website providing tips for implementing and maintaining safety equipment in homes where the disabled live.
- Home Advisor – Provides information on costs associated with making modifications to a home in order to accommodate the needs of those with disabilities.
- Fire Safety & Disabilities Guide – Includes tips for maintaining fire safety for those with disabilities, and a list of additional resources on fire safety for those who have cerebral palsy and other disabilities.
- ConsumerAffairs Stair Lift Buyer’s Guide – Contains consumer information regarding stairlifts, including brand comparisons, features, and customer reviews.
Those with cerebral palsy and their caregivers have financial needs. The following links provide information on various personal finance topics that are both helpful and necessary for those with disabilities and their caregivers.
- Personal Finance Guide for People with Disabilities – Provides information and additional resources on various personal financial issues that are important to people with disabilities.