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California Cerebral Palsy Resources

STATE DEPARTMENT OF EDUCATION: SPECIAL EDUCATION
Alice Parker, Director
Special Education, Department of Education
515 L Street, Suite 270
Sacramento, CA 95814
(916) 445-4729
Web: http://www.cde.ca.gov/index.asp

PROGRAMS FOR CHILDREN WITH DISABILITIES:
AGES 3 THROUGH 5
Alice Parker, Director
Special Education Division
California Dept. of Education
515 L Street, Suite 270
Sacramento, CA 95814
(916) 445-4623
Web: http://www.cde.ca.gov/index.asp

PROGRAMS FOR INFANTS AND TODDLERS WITH DISABILITIES:
AGES BIRTH THROUGH 2
Carlos Flores, Manager
Prevention & Children Services Branch
Department of Developmental Services
1600 9th Street, Room #310
Sacramento, CA 95814
(916) 654-2773
E-mail: cflores@dds.ca.gov

OFFICE OF STATE COORDINATOR OF VOCATIONAL EDUCATION FOR STUDENTS WITH DISABILITIES
Department of Education
721 Capital Mall
Sacramento, CA 95814
(916) 657-2451

STATE MENTAL HEALTH AGENCY
Stephen W. Mayberg, Director
Department of Mental Health
1600 9th Street
Sacramento, CA 95814
(916) 654-2309

STATE MENTAL HEALTH REPRESENTATIVE FOR CHILDREN AND YOUTH
Gary Pettigrew, Deputy Director
Systems of Care, Department of Mental Health
1600 9th Street, Room 151
Sacramento, CA 95814
(916) 654-3551
E-mail: GPettigr@dmhgw.cahwnet.gov

STATE MENTAL RETARDATION PROGRAM
Clifford Allenby, Director
Dept. of Developmental Services
Health & Human Services Agency
1600 9th Street, 2nd Floor
Sacramento, CA 95814
(916) 654-1897
E-mail: callenby@dds.ca.gov

STATE DEVELOPMENTAL DISABILITIES PLANNING COUNCIL
Judy McDonald, Director
State Council on Developmental Disabilities
2000 ?O? Street, Room 100
Sacramento, CA 95814
(916) 322-8481

PROTECTION AND ADVOCACY AGENCY
Catherine Blakemore, Executive Director
Protection & Advocacy, Inc.
100 Howe Avenue, Suite 185N
Sacramento, CA 95825
(916) 488-9950; (800) 776-5746 (In CA)
E-mail: hn1232@handsnet.org
Web: www.pai-ca.org

CLIENT ASSISTANCE PROGRAM
Sheila Conlon Mentkowski, Chief
Client Assistance Program
2000 Evergreen Street, 2nd Floor
Sacramento, CA 95815
(916) 263-7372; (800) 952-5544
E-mail: smentkow@rehab.cahwnet.gov
Web: http://www.rehab.cahwnet.gov/

PROGRAMS FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS
Maridee Gregory, Chief
State Children?s Medical Services Branch
Department of Health Services
714 P Street, Room 350
Sacramento, CA 95814
(916) 654-0832

PROGRAMS FOR CHILDREN AND YOUTH WHO ARE DEAF OR HARD OF HEARING
Fred Lewis, Chief
State Office of Deaf Access
Department of Social Services
744 P Street, MS 6-91
Sacramento, CA 95814
(916) 653-8320; (916) 653-7651 (TTY)
E-mail: deaf.access@dss.ca.gov

STATE EDUCATION AGENCY RURAL REPRESENTATIVE
Ted Hawthorne, Consultant
Special Education Division
CA Department of Education
515 L Street, Suite 270
Sacramento, CA 95814
(916) 327-3505

REGIONAL ADA TECHNICAL ASSISTANCE AGENCY
Erica Jones, Executive Director
Pacific DBTAC
Public Health Institute
2168 Shattuck Avenue, Suite 301
Berkeley, CA 94704-1307
(510) 848-2980 (V); (510) 848-1840 (TTY)
(800) 949-4232
E-mail: adatech@pdbtac.com
Web: http://www.pacdbtac.org/

DISABILITY ORGANIZATIONS
Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CH.A.D.D)
8181 Professional Place, Suite 201
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
E-mail: national@chadd.org
Web: http://www.chadd.org/

National Attention Deficit Disorder Association (ADDA)
P.O. Box 1303
Northbrook, IL 60065-1303
E-mail: mail@add.org
Web: http://www.add.org/mc/page.do;jsessionid=86633C8D95EFFF0312FD2383DAF5617A.mc0?sitePageId=92488

Autism
To identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: http://www.autism-society.org/site/PageServer

Brain Injury
Claude Munday, President
Brain Injury Association of CA
P.O. Box 160786
Sacramento, CA 95816
(916) 442-1710; (800) 457-2443
E-mail: csm4483@AOL.com

Cerebral Palsy
Jo Gates, Executive Director
United Cerebral Palsy of Greater Sacramento
191 Lathrop Way, #N
Sacramento, CA 95815
(916) 565-7700
E-mail: UCPSacto@AOL.com

Epilepsy
Jackie Vella, Executive Director
Epilepsy Society of San Diego County
2055 El Cajon Blvd
San Diego, CA 92104
(619) 296-0161
E-mail:epilepsy@epilepsy-fnd-sd.org

Learning Disabilities
Betty G. Schiemenz, Administrative Director
Learning Disabilities Association of CA
655 Lewelling Boulevard, #355
San Leandro, CA 94579
(916) 725-7881
Web: http://www.ldaca.org/

Mental Health
Rusty Selix, Executive Director
Mental Health Association in California
1127 11th St , #830
Sacramento, CA 95814
(916) 557-1167
E-mail: mhac@cwo.com

United Advocates for Children of California
P.O. Box 8900
Emeryville, CA 94662
(510) 547-8754
E-mail: vacc@pacbell.net

Karen Hart, Young Families Chair
NAMI-California
291 San Bernabe Drive
Monterey, CA 93940
(408) 373-3966

Grace McAndrews, Executive Director
NAMI Children & Adolescent Network
California Alliance for the Mentally III
1111 Howe Ave., Suite 475
Sacramento, CA 95825
(916) 567-0163
E-mail: califami@AOL.com
Web: http://www.cami.org/

Mental Retardation
Laurie Shields, Executive Director
Arc California
1225 8th Street, Suite 590
Sacramento, CA 95814
(916) 552-6619

Speech and Hearing
Barbara O?Hara, Executive Director
CA Speech-Language-Hearing Association
825 University Ave.
Sacramento, CA 95825
(916) 921-1568
E-mail: csha@CAspeech.Hearing.org

Spina Bifida
Spina Bifida Association of Bay Area
P.O. Box 6015
Moraga, CA 94570
(925) 210-6006

Spina Bifida Association of Greater San Diego
P.O. Box 232272
San Diego, CA 92193-2272
(619) 491-9018

Visual Impairments
Gil Johnson, Director
American Foundation for the Blind-West
111 Pine Street, Suite 725
San Francisco, CA 94111
(415) 392-4845
E-mail: sanfran@afb.net

UNIVERSITY AFFILIATED PROGRAM
James McCracken, Director
University of California at Los Angeles, UAP
760 Westwood Plaza
Los Angeles, CA 90024
(310) 825-0470
E-mail: jmccracken@mednet.ucla.edu

Robert A. Jacobs, Director
Center for Child Development & Developmental Disabilities
Children?s Hospital LA
USC ? University Affiliated Program
P. O. Box 54700, MS #53
Los Angeles, CA 90054-0700
(323) 669-2300

TECHNOLOGY-RELATED ASSISTANCE
Dennis Law, Project Coordinator
California Assistive Technology System
CA Department of Rehabilitation
830 K Street
Sacramento, CA 95814
(916) 263-8685 (V/TTY)
(800) 390-2699 (V/TTY, In CA)

PARENT TRAINING AND INFORMATION PROJECTS
Joan Tellefsen, Director
Team of Advocates for Special Kids (TASK)
100 West Cerritos Avenue
Anaheim, CA 92805-6546
(714) 533-TASK
E-mail: taskca@AOL.com

Gus Licht, Director
Team of Advocates for Special Kids (TASK), San Diego
3750 Convoy Street, Suite 303
San Diego, CA 92111
(619) 874-2386
E-mail: tasksdl@AOL.com

Mary Ellen Peterson, Chief Executive Officer
Northern California Coalition for Parent Training
Information (NCC)
Parents Helping Parents
3041 Olcott Street
Santa Clara, CA 95054-3222
(408) 727-5775
E-mail: info@PHP.com
Web: http://www.php.com/

Lois Jones, Director Parents Helping Parents ? San Francisco
594 Monterey Boulevard
San Francisco, CA 94127
(415) 841-8820

Marion Karian, Executive Director
Exceptional Parents Unlimited
4120 North 1st Street
Fresno, CA 93726
(209) 229-2000
E-mail: epu1@cybergate.com

Susan Henderson, Director of Administration
Disability Rights Education and Defense Fund, Inc. (DREDF)
2212 6th Street
Berkeley, CA 94710
(510) 644-2555
E-mail: dredf@dredf.org
Web: http://www.dredf.org/

Deidre Hayden, Executive Director
MATRIX, A Parent Network & Resource Center
94 Galli Drive, Suite C
Novato, CA 94949
(415) 884-3535; (415) 884-3554 (TTY)
E-mail: matrix@matrixparents.org
Web: matrixparents.org

Juno Duenas
Support for Families of Children with Disabilities
2601 Mission Street, Suite 804
San Francisco, CA 94110
(415) 282-7494
E-mail: sfcdmiss@AOL.com

COMMUNITY PARENT RESOURCE CENTER
Theresa Cooper
Loving Your Disabled Child (LYDC)
4528 Crenshaw Blvd.
Los Angeles, CA 90043
(323) 299-2925
E-mail: lydc@pacbell.net

PARENT TEACHER ASSOCIATION (PTA)
Rosaline Turnbull, President
California State PTA
930 Georgia Street
P.O. Box 15015
Los Angeles, CA 90015
(213) 620-1100
E-mail: ptacala@AOL.com

OTHER DISABILITY ORGANIZATIONS
Bart Charlow, C.E.O
Easter Seals of the Bay Area
6221 Geary Blvd.
San Francisco, CA 94121
(415) 752-4888
Web: www.esba.org

Karen Pekarcik, Executive Director
Family Resource Network
5250 Claremont Avenue, Suite 235
Stockton, CA 95207
(209) 472-3674; (800) 847-3030
E-mail: pekarcik@goldrush.com
Web: http://www.virtualstockton.com/?dl=1

Christine Meinsen, Founder & Advocate
FOCUSED (For Our Children Under Stress with Educational Disabilities)
P.O. Box 417
Lakeside, CA 92040-0417
(619) 390-HELP (4357)

Troy Botello, Board President
VSA (Very Special Arts) California
2800 North Main Street
Suite 2050
Santa Ana, CA 92705-6615
(714) 835-8867
E-mail: vsacal@earthlink.net

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